Results from a new study support the validity of a score that considers various patient-reported measures and preferences for assessing health-related quality of life, and promoting patient-centred care, in individuals with kidney failure. The study appears in the most recent issue of the Clinical Journal of the American Society of Nephrology (CJASN).
The PROMIS (Patient Reported Outcomes Measurement Information System) Preference Summary Score—or “PROPr”—is determined from seven domains: cognitive function, depression, fatigue, pain interference, physical functioning, sleep disturbance, and ability to participate in social roles.
When investigators led by Istvan Mucsi and Jing Zhang (University Health Network and University of Toronto, Toronto, Canada) correlated PROPr with other health-related measures, their findings supported the validity of PROPr among 524 patients who were undergoing haemodialysis or who had recently received kidney transplants, an American Society of Nephrology (ASN) press release states.
“Up to 70% of patients with kidney failure experience persistent physical symptoms and emotional distress that substantially impair health-related quality of life,” said Mucsi. “These concerns are under-reported, under-recognised and under-managed. Our results open the doors for the use of PROPr and PROMIS as tools in nephrology research, and in the care of patients with kidney failure.”
